marlow

Hospital discharge on a Friday

The questions to ask before leaving the hospital, and how a family gets through the first weekend at home without losing the follow ups.

The short version: don’t leave the building without the discharge summary, the medication list with what was stopped, the follow-up appointments, the name of who to call, and the prescriptions in hand. Then split the first 72 hours into shifts.

The call comes at 3:40 on a Friday. She’s being discharged this afternoon, can somebody come. The unit wants the bed, the doctor who knows her case has gone home, and the pharmacy closes at six. Whoever picks up that call is about to run the next 72 hours of somebody’s medical care with a stapled packet of paper and no one to ask until Monday.

It’s doable. It’s much more doable if you refuse to leave the hospital until you have five things.

Don’t leave the hospital without these

The nurse will be busy and the discharge will feel like it has already happened. Ask anyway, politely and without moving, until you have each of these in your hand or on your phone.

  1. The discharge summary. Why she was admitted, what was done, and what happens next, in writing. If they say it will be sent to her doctor, ask for a copy for yourself as well, today. If it isn’t ready, ask who will send it and when, and write that name down.
  2. The medication changes, and specifically what was stopped. More on this below, because it’s where discharges go wrong.
  3. The follow up appointments, and who books each one. Some are made before you leave. Some are “the clinic will call you”. Some are “see her own doctor in a week”, which means you are booking it. For every one, you want to know which.
  4. Equipment. If she’s going home with a walker, a commode, oxygen, a hospital bed or anything that plugs in, find out whether it’s being delivered, when, and what number to call if it doesn’t arrive. A Friday delivery that slips to Monday is a weekend on the couch.
  5. Who to call over the weekend. Not the main hospital number. The unit’s direct line, the on call service for her condition if there is one, and what counts as “come back in” versus “wait until Monday”. Ask the nurse to say it out loud and write it down in her words.

What was stopped matters more than what was started

A discharge usually comes with a new medication or two, and everyone pays attention to those: the box, the leaflet, the first dose. The thing that gets missed is the one they took her off.

Here is how it goes wrong. The hospital stops a pill she has taken for years, for a good reason that’s written in the summary. She goes home. The old bottle is still in the kitchen, next to the pill organizer she fills every Sunday. Nobody told her in a way she remembers, and nobody told the pharmacy at all. On Sunday she fills the week the way she always has.

So before you leave, ask for the list of what she is taking now, in full, and put it next to the list of what she was taking before. Anything on the old list and not the new one is a question for the nurse, and the answer goes in writing. When you get home, the stopped medications leave the kitchen that evening. Put them in a bag in a cupboard, out of the routine, until her own doctor confirms. Then update the paperwork folder, because the medication list in it is now wrong.

None of this is advice about any particular medication. It’s advice about kitchens. The pharmacist and her doctor decide what she takes; the family’s job is making sure the kitchen matches what they decided.

The first 72 hours at home

The first three days are mostly about noticing. Is she eating. Sleeping. Is she more confused than usual, which after a hospital stay is common and still worth a call. Is the new pill doing something the leaflet warned about. Is anything the nurse said to watch for actually happening.

That’s the whole job, and it’s easier if one person is watching rather than four people each assuming another is. Keep a page on the counter: the date, what she ate, what she took and when, anything odd. Not for the doctor, necessarily. For the sibling who takes over on Sunday and needs to know what Saturday was like without a forty minute phone call.

The other thing the first 72 hours are for is the phone. Somebody has to be reachable, and it has to be one person at a time, not the group chat. If the unit said to call about a fever, the person on duty calls, and doesn’t first poll the family.

Split the weekend into shifts

A discharge lands on the sibling who was free on Friday afternoon, and then that sibling is, by default, on duty until Monday. Don’t let it default.

Split the weekend into shifts on Friday night, while it’s fresh and before anyone is tired. Friday evening and overnight. Saturday day. Saturday night. Sunday. Each one has a person, and the person on shift is the one who watches her and the one whose phone rings. The person off shift is off. Actually off, not on standby. The sibling in another state can’t take a shift on the couch but can take the calls: the pharmacy at nine on Saturday, the equipment company that hasn’t turned up, the on call line to clarify something the summary left vague, the neighbor who wants to know how she is.

Write the shifts down where everyone can see them, and treat the handover like a real one: five minutes with the page from the counter. The split the driving post makes the same argument for rides.

The follow ups that get lost

Not the appointment that’s already booked; the letter will come and somebody will see it. What gets lost is the follow up that exists only as a sentence: “see your own doctor in a week”, “the clinic will be in touch about the scan”, “if the swelling isn’t down by Tuesday, call us”.

Each of those is a task with a date, and on Friday afternoon it’s in one person’s head. By Monday it’s in nobody’s. So before the weekend starts, every one of them goes into the family’s shared schedule, immediately, even as a placeholder. “Book primary care visit, by Wednesday, Dan.” “Scan letter, chase if nothing by the 5th.” “Swelling check, Tuesday.” Whoever is responsible is named, and if the clinic is meant to call, the entry says so and gives a date after which somebody chases.

The follow ups from a discharge are also often rides, and they are the rides most likely to end up with nobody, because they were booked in a hurry by a tired person on a Friday. Keeping track of a parent’s medical appointments covers the list itself. If the family uses a shared schedule that shows whether each appointment still needs a driver, this is the week it earns its keep. Marlow is one, iPhone only and new, and it holds the appointments, the rides and her medicine times, not the discharge summary itself. That stays in the folder.

Monday morning, the person who took Friday’s call hands over the summary and the page from the counter, with what’s still unbooked written at the bottom of it. Then they take a day off, on the calendar, like an appointment.

If this sounded like your family, Marlow was built for it.

A shared schedule for the people doing the driving, and one quiet screen for the person being driven.

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